LOS ANGELES, Calif. — In March 2020, Diana Berrent shared her coronavirus journey with the world, documenting her 18-day quarantine with daily videos.
Berrent stated, “No one believes they will be the first to catch the plague. But, you know, life is fast.” “I knew I would be one of the survivors.”
Berrent was able to recuperate at home and channeled her gratitude to find ways to help others.
Columbia Presbyterian is recruiting survivors to donate blood and plasma in order to collect the antibodies that will hopefully save the lives and properties of those who are dying. “I am participant 001 at Columbia Presbyterian.” She shared her online followers’ thoughts in March 2020.
Berrent said she was obsessed with the idea convalescent blood plasma. She started convalescent plasma while in quarantine. Survivor CorpsA grassroots movement that mobilizes COVID-19 survivors to donate plasma for research.
Berrent said, “As an survivor, i had built this inner hazmat suit I could share with others and it was incredible powerful,”
Berrent was grateful for the opportunity to help patients and science, but she later described this badge of honor in a way that made her feel like a ticking bomb. The COVID-19 symptoms she experienced remained for several weeks after her recovery, before new symptoms appeared.
“By April’s middle, we knew. She explained that COVID survival did not necessarily mean recovery from it.
Her survivors network was a refuge for her. long COVIDMany people with the virus have suffered from debilitating symptoms for years.
Berrent asserts that it is not brain fog, but cognitive dysfunction. The fatigue is described by those who experienced it as “being hit by a bus and then being rolled over by trains.”
Her nonprofit has attracted nearly 180,000 members with the help of a small group. online.
Berrent said, “It took a small number of suburban moms who were Zoom-schooling on the side” to bring everyone together. “I like to think about ourselves as the Moms Demand Action for COVID.
They now have a seat at table by telling survivors’ stories to scientists.
“We are subject matter experts to both the White House Task Force and the CDC. We also act for the NIH. Berrent said that he sits on the NIH’s RECOVER panel. “I am a member of more steering committees that I can count.”
Their advocacy helped Yale launch research studies.
However, Congress approved more than $1 billionPatient advocates call for researchers to urgently begin studying long-haul COVID.
Berrent said, “There are scientists all over the U.S. that are trying to do scientific research.” “And they are saying that we can’t do any research because we wait for the NIH funds to be distributed.”
The agency released last month’s announcement plansTo build a national study population. The large-scale effort will be funded by more than 100 researchers.
“We are there to give them signals and to show them what’s happening. What people are suffering from. Berrent stated that people need to get the real science. “People are losing faith, and that is not a good place to be at the moment.”
Their network of survivors looking for refuge continues to grow after twenty months.
Berrent said, “We have a long road ahead.” “The thing that keeps me going is the incredible progress we’re making. People are paying attention to us. We are changing how people think.